- TOTW How....
- Need Advice how would you handle this?
- Ugh! I can hardly believe it!
- Loma Linda off for today.
- So frustrated w/ the lack of follow through (LONG)
- What is a sleep EEG?
- Have you heard of Keppra?
- Question Sz and therapy. How do yours co-exist?
- Question 24hour urine collection
- Question Yet another seizure question.
- Help could this symptom be seizure related?
- Need Advice Am I imagining this? (pic)
- dragging a leg?
- Help Hand Tremors Getting Worse
- how can seizures happen when
- can seizures cause wetting the bed?
- Poor Isaiah
- Need Hugs Screaming/breath holding episodes are back
- staying up for his eeg
- somethings going on
- Good News! Brandons speech/New Medication
- Could this be a reaction to weaning from the phenobarb?
- silent seizures?
- anyone deal with daily seizures?
- Neurontin withdrawal?
- Update! Will's swallowing issues
- who dx's EDS?
- Need Hugs Lousy ped visit today.
- Need Hugs EEG results
- Update! on valkyrie
- One Step Closer To ACE Procedure
- SLEEEEEEEP.
- Sharing some favorite GF baking recipes
- Need Hugs I'd like to cry right now
- Dee - Melatonin
- seeing the ped tonight
- Update! I love doctors with a plan!
- exhausted after seizures
- Update! On Kelly!
- News More on the EEG
- Dilated Pupils...
- Colitis/inflammatory bowel disease?
- I think we have to stop the new med. :(
- is there a pattern to seizures?
- Would you take the report?
- Question startle seizures?
- Update! ACTH and our marathon stay in Hospital and Hospic
- Help Withdrawal twitches, seizures, or what??
- Prompt Therapy
- Abnormal Vascular Structure Right Side Brain
- Sleep Study
- Update! Neuro appointment
- News Surprize EEG Today at 1:30
- Help Was this a siezure???
- Sarah's colonoscopy results
- Question Is a Seizure Disorder the same as having Epilepsy???
- Seizure or pulse-ox quirk?
- I am sick of the "system"
- Question Rufemide/Banzel
- Help Bug bite or something else?
- A question about Labs
- Question Anyone here from Indiana?
- Treatment Book Review: Complementary and Alterative Therapies for Epilepsy
- Jackson's neuro appointment
- Good News! We're Home!!!!
- How Do They Read EEG's?
- Movement Med #2... Sinemet
- Treatment Here is the (semi) update I promised
- Anyone know about a new med for myoclonic seizures?
- Announcement! HUGE NEWS!!!
- Update! Jackson's testing today
- talked to the doctor about the migranes
- Ugh! Rough week- any ideas?
- Update! TJ's Neuro appt.
- Calcium Oxylate Crystals in urine
- Medical Tape for the child with SENSITIVE skin
- Hospital Discharge Summaries- vent!
- Question Do your older kids know their medications?
- Update! Finally, the Brigid plan (insanely long)
- Question Autonomic/dysautonomia dr (chicago ladies)
- CLEAR CLEAR CLEAR!
- Call me a liar!!!
- It's been a long month...
- Question Where did..
- children's hospital of wisconsin
- school anxiety
- Sleep study??
- Finally got Kayla a neuro appt.
- Update! Koty's neurology appt yesterday
- Head CT With Contrast, Head CT Angiogram Difference?
- Update! Eithene Update
- Neurogenic bladder
- gotta love when you get a call from the school nurse
- Anyone on lasix...
- question about therapeutic levels of seizure meds
- I don't know what to do!
- apneas and breathing problems
- Cross post: Long Fainting Spell
- not again!!!
- Not doing well after hip surgery
- DDAVP challenge test tomarrow
- Ugh! persistent utis
- Only at our house
- Weaning off methadone
- Help baclofen withdrawls?
- Nathan saw the ortho today
- News Saw Neuro today and we're........
- Generic for Depakote
- Non-stop UTI's
- For those with kids on baclofen....
- Help What do I do?
- Help Need quick blood sugar help
- Any kids on here with spondylolisthesis?
- Avery update
- Question urine smells like ammonia?
- Another update
- Have You Ever Had A Piece Of Equipment You Don't Remember Getting?
- Is anyone familiar with Atrial Fibrillation??
- M's in the ER
- Insuarance "max out of pocket" question
- If your child takes meds for chronic pain....
- Need Hugs Something is wrong with his heart....
- Update on Sam's heart....
- Head CT Angiogram Rescheduled
- Really cool medical ID bracelets
- Speaking of medical bracelets...
- Question If you cath your child.....
- "Ambulatory" 72 hour eeg starting this afternoon
- Kelly
- Broken or Not
- Update! Urology apt update and foley questions
- I am beside myself:(
- Trileptal
- Help Foley Cathing help PLEASE
- Good News! NORMAL!!!!
- Why do I even bother!?
- Clonazepam?
- Dysautonomia Test results ...Propranolol? (it's long)
- Talk to me about KIDNEYS
- EMG and Kub
- Ugh! increase in seizures
- side effect of sedative???
- Need Hugs Another Gtube infection!
- I'm going to say this very quietly...
- Ehlers Danlos syndrome
- Need Advice CT Scan - sedate or GA?
- Keto diet for Infantile Spasms?
- WWYD about Therapy
- Update! On Us - Well CJ and Kelly!
- Question drawing up meds
- WHY does Cate have a Pediatrician?????
- Notes for school meeting - is this alright?
- Pain
- Ugh! It just won't heal
- Update! inpatient
- Need Advice Syracuse NY A PEDS NEURO?
- Update! back from Cardio with a heart monitor!
- Koty got his new orthotics yesterday
- still in the hospital--pic heavy
- Need Advice Grow rods surgery for scoliosis
- scoliosis surgery?
- Help Anyone seen this before?
- Kids on TPN(urine output)
- Update! Test results and Pain Management
- Update on Jackson
- Ugh! seizure vent...
- DS just diagnosed with epilepsy--tell me more
- Question Tethered Cord questions
- Adding "Dope"amax to the mix
- I can not wait for Tuesday.
- Ugh! VENT. Public Health Nurses.
- HAd clinic today lots of changes(seeing surg about ostomy)
- home from hospital
- Those with frequent UTI's
- do UTIs go away on their own?
- Am I being unreasonable? (seizure meds)
- Dysautonomia Sweat test and tilt table test?
- hyper secretions? DGE?
- I need a good neurologist at Children's in Columbus OH
- Appointment Shriner's on Monday!
- Need Advice would you be concerned by this?
- Need Hugs seizure....what type is this?!?
- Well, it happened....
- Kidney issues and mito? - cross post with mito forum
- The pain monster
- Kayla is going to the neuro today..
- Will's swallow study results
- Neuro appt today
- GI called - have question
- Vent: Liam has swallow study today Mom not looking forward to it.
- Will's MRI is tomorrow.
- Need hugs
- Central line/Port users....
- J's testing today
- We're done.
- Gluten/Cassein Free
- Need Ideas Leaving a seizure child while having a baby....
- Need Ideas Input from the pros regarding ward rooms
- What is up with her heartrate?
- Good News! TJ has not vomited in...............
- Ugh! A little overwhelmed... long
- delicate balancing act
- Kristins eeg
- Jake's Blood Type Poll
- UGH more tylonal!
- A gorilla in your house
- Will's MRI results
- Cerebral Palsy back from ortho appt.
- Orthopedic Molly's Shriner's update
- update on things...Neurosurgeon apt etc
- The homecare saga continues... unbelievable.
- Electrical Cord management
- How slowly things move....
- Quick update on Kristin
- Brigidd update - last few days
- We need a new company to provide our TPN
- Need Hugs ANOTHER BAD SEIZURE !! and our update from appts Today
- Body temp regulation issues
- Update on Jacobs appointments
- um, this isn't okay....
- Update! neuro appt today
- terminating our nursing
- Change in diagnosis for Sam...
- More vaccine issues?
- neurology farce and thats mild
- Stacool vest
- we're off
- We made it 17 weeks without vomit
- anyone know what this means exactly?
- absence of REM sleep
- can you please share pics of ports, hickmans, and any other more permanent iv access
- I think we may be fighting a losing battle.
- Update! Mya still in hospital
- Chronic Sinus Infections
- Question Tell me about Banzel
- News Veeg update
- iv access qestion
- Scoliosis
- Update! Mya is so bloated
- Bisphosphonates
- TPN plus enteral feeds--use it or lose it
- Humate P infusion for Von Willibrands Disease
- Need Hugs Gtube infection #8 brewing
- Ugh! Seizures and gut problems (long)
- Coping mechanisms
- Update on Jacob's surgery.
- Need Advice Tonic seizures
- Cystic Fibrosis??
- Diagnosis day
- PDA reopened?