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  1. hypermobility??
  2. Anybody DC on Clonidine
  3. Leg jerks while sleeping?
  4. CoQ10....any idea for stain removal?
  5. On our way to Cleveland...
  6. Good News! I Just Saw Landon and Dr K On the News!!!
  7. Jacob's latest blood work result
  8. Link to watch Landon and Dr. K on the news
  9. Shuttering episodes
  10. Hi, I'm new here!
  11. Help breathing issues?
  12. Urine output...
  13. Starting Tetrabenazine tommorrow! (movement med)
  14. Need Advice Energy
  15. Need Hugs Nuero for me now...
  16. Difference Between Specialists
  17. small bowel and colonic motility
  18. Need Advice Where is the best place to go?
  19. Mito and Tylenol
  20. Safety of GH stim test
  21. Appointment Belated thanks & prayers needed
  22. Sugary smell???
  23. Help Looking for advice please on second MRI...
  24. Now Jacob is being tested for Von Willibrand
  25. United Healthcare and mito??? (uhc)
  26. Good News! Holy Crap!!!
  27. Julia (Bluemonkey)....
  28. How does Mito affect your kiddos energy?
  29. Need Advice Hello again all!
  30. Mito To-Do list (a must read for the newly diagnosed!)
  31. Need Advice Sorry......forgot to ask earlier.
  32. Swelling?? (pic)
  33. Question Seizures and/or stroke like events with long term effects
  34. Question Seizures during sleep?
  35. Second Sleep Study tongiht
  36. Ugh! Sock in the stomach!
  37. Update! Jacob's results from his labs yesterday
  38. Question Boston Medical Reasearch
  39. incontinent and self-esteem? (long)
  40. Need Ideas Giving CoQ10
  41. Update! Carnitine Odor information!!
  42. Im not cut out for this.
  43. Nursing Care Bright red blotchy skin?
  44. HUGE phew......
  45. Ques. to ask regarding bx results.
  46. VNS for seizures in mito?
  47. Update - no tube today
  48. CoQ10 dosage/weight
  49. Im officially discharged from Neuro!!
  50. Just overwhelmed
  51. Holding off on seeing the Hematologist
  52. standing cross legged??
  53. Acetyl-carnitine anyone?
  54. insurance- going to lose my mind
  55. Did anyone see this from UMDF?
  56. Question on mito testing
  57. Is there anything to do for Autonomic Dysfunction?
  58. Update! Sleep Study and Part 2 Florida Specialists
  59. where is a mito expert?
  60. Question How Do You Know If It Is Dysautonomic?
  61. How do you tell the difference between...
  62. Need Ideas Pain?
  63. Mito and which hospital?
  64. anxiety??
  65. e-mails form med students?
  66. Something is brewing...
  67. Meggy Update
  68. Thought I would update (long)
  69. Question What could this be?
  70. New York specialists?
  71. noooooo...
  72. Ugh! How hard is it to have an appt and keep it?!?
  73. Erin, RE: knock knee'd look
  74. New to possible mito
  75. Appointment Update on the boys' GI appts...
  76. Anyone go to DeVos in Michigan?
  77. Announcement! BIG milestone finally!!
  78. off the wall questions...
  79. Ugh! Caleigh is back at Riley yet again!
  80. This Sucks
  81. How long to see effects from L carnitine?
  82. bedwetting??
  83. Ugh! A lot of missed days of School...
  84. Ugh! This is sooooooo NOT good!!!
  85. Ugh! Oh great...even better...
  86. Debbie - Dr T question
  87. Is this normal with the "mito cocktail"?
  88. Frustrated
  89. Talk to me about cold weather
  90. Riley visit update
  91. pain in bladder area no UTI
  92. Mel - how are the boys?
  93. Function in Louisiana
  94. Need Advice back from Peds, and STILL a fever!
  95. Question Question for those of you who have seen Dr. P...
  96. Ugh! Chicken Pox
  97. Anyone with mito and oxygen?
  98. Yee Haw!!! (no really though)
  99. Fifth's Disease
  100. Whew...the benefit is over!
  101. Question Complex V
  102. Ugh! Any Ideas???
  103. Anyone done the mtdna-WGNM?
  104. Update! on Wyatt
  105. New video from the UMDF....Joe Wise...
  106. Anyone going to the 2009 Symposium in D.C.?
  107. Everyone sick here
  108. Q. about Dr. K...
  109. Nathan's diagnosis
  110. Help Lactated Ringers?!?!?!?!?
  111. Need Advice Peds appt tomorrow...have questions
  112. Short fingers?
  113. Question about acylcarnitine profile results
  114. called our state rep.
  115. Something is going on??? Regression??
  116. Does anyone receive SSI or SSDI?
  117. Question getting worried, now headaches too
  118. Question Confusion a/b partial bx report...
  119. Appointment Our Appointment W/ Dr K - Not Mito
  120. Quinn update! Metablic Appt! More Mito Markers.
  121. Update on our mito clinic vistit.- long
  122. Tests are back but Dr. didn't call
  123. Losing faith
  124. Question low levels of leukocytes?
  125. Does anyone have a small cooling vest...
  126. Hugs all around for the mito families......
  127. A few (ok a LOT) of questions and a small intro...
  128. I need some help with these results
  129. Lactate, Pyruvate, and Acylcarnitines...oh my!
  130. Update! We are officially a member now!
  131. Leyla Update
  132. Update! Apt. at Boston Children's Genetics Dept.
  133. New here =)
  134. New here =)
  135. I am....
  136. Good News! We had sooo much fun today at the mito walk!
  137. Does anyone give Biotin as part of the cocktail?
  138. Some pictures!!
  139. Question Mito moms, your labs?
  140. Question Houston Moms, how was your Mito walk today?
  141. Nicholas is not doing well right now...
  142. Mito and Physical Deformities?
  143. ringing in the ears??
  144. hibernation- strange or dangerous
  145. Update on Nicholas...
  146. Need Advice High Neut and WBC
  147. So, what is your response when people say...
  148. Whispering.......
  149. Is anybody on here from the UK or Australia?
  150. Is your DC "small"?
  151. Do you eve feel like it's all too much to bear?
  152. What does elevated pro-lactin mean?
  153. sick and tired of not knowing what to do
  154. Questions for those with kids with GH issues who don't treat...
  155. hydration
  156. TOTW Introduce yourself!!
  157. Melody (AggieMom) - how is Nicholas?
  158. Question Does anyone see a doc at Stanford?
  159. I will be leaving you all on this board
  160. He's so tired. :(
  161. Gah - Im sick.
  162. Liam is Sick
  163. Good News! Im so HAPPY!
  164. Help The founder of the Mitochondrial
  165. Kylee had her sleep study done last night
  166. Question??
  167. Ty's latest diagnosis.
  168. Question drs. questioning mito issue
  169. Why does this happen when he is sick?
  170. I am so impatient!
  171. back and ready to accept this
  172. We do belong here.
  173. Anyone who has pulm issues and mito.....
  174. neurontin, behavioral side-effects?
  175. Is this reasonable or has anyone tried this (GI stuff). . .
  176. Sick Well no wonder she's so worn out!!
  177. Talked to Dr. K
  178. Do any of your kids get chronic yeast or fungal infections?
  179. good days and bad days?
  180. new here...DD with hyptonia/gdd
  181. Another ? about small/GH stuff
  182. Methylmalonic acidemia
  183. News For Mito familes ages 7- 16
  184. Really bizarre observation since my heart surgery.
  185. Update! neuromuscular doctor(long)
  186. Lack of weight gain
  187. Lab Results
  188. eyes
  189. Update! MDA
  190. Ugh! Sheesh...are you serious!!??
  191. Dehydration=Muscle pain?? and a mito study
  192. Growth spurts and kids with motor or tone issues??
  193. Anyone done manometry testing
  194. Primary v. secondary and other questions.
  195. i hate not knowing what the he** is going on.
  196. sugar ??s
  197. Question How many of you have a will?
  198. Regression question??
  199. Need Advice erythromycin and mito
  200. Good News! Respite
  201. I'm so excited!
  202. Hope for the southerners
  203. Question New here and question about water (long)
  204. Insurance Issue Paying for muscle biopsy
  205. Update on Matthew...
  206. injustices in care/insurance
  207. Anyone see this article?
  208. HOPE!!!
  209. Help with low temps!!! QUICK!
  210. Good News! CoQ10 dots..
  211. Mito kids and tone
  212. Need Advice new to all of this..
  213. Mito Myths
  214. Therapy What an ordeal! VENT, RANT, long
  215. Attention ingym23
  216. Update! Just gets better...staph/MRSA
  217. tubes in ears
  218. UG!! How hard is it to leave a scheduled appt alone???
  219. Pyruvic acid-HELP!
  220. Melody, how is Nathan?
  221. Question Mitochondrial Symposium 2009
  222. Great Youtube video on Energy for Education from Mito Action
  223. Need Ideas a local fundrasier for the UMDF
  224. Neuro appt
  225. More falling...
  226. Brandon update
  227. Random carnitine Question
  228. Appt. with Dr. K today...
  229. Inheritance (from mother) question
  230. Need Advice Sleep study results
  231. Update on Ali
  232. Leyla Video Montage
  233. News I Gave Notice At Work
  234. Muscle biopsy normal
  235. Starting the testing for Mito
  236. Acetoacetate & Hydroybutyrate
  237. Update! & prayers for surgery
  238. All the paper work is in
  239. Irritability
  240. liver biopsy?
  241. appt at Cleveland Clinic
  242. Abby's diaper rash
  243. Question PTEN blood test
  244. Need Hugs back from genetics appt....
  245. Anyone heard how Landon is??
  246. TOTW Tell us about your upcoming appointments!
  247. Question feeding tubes
  248. Ugh! New problems
  249. Good News! WOO HOO!!!!
  250. Liquid B vitamins?