For new members to make introductions and get to know the forums. Also a good place to ask questions about the forums.
Sticky Threads
Thank you for joining Parent-2-Parent! We're always glad to see new people and hope that we can offer support and friendship to other parents of children with needs. Now that you have joined please note a few things. First, all new messages are "moderated" by new users. This means that once you post, it may take some time for your post to show on the forums. We make every attempt to approve posts as quickly as possible, but due to the fact that this is a all volunteer effort sometimes it...
Dear Members, We have set into place some signature (siggy) limitations, effective immediately. If you should have any questions please contact our Admin team at comments@parent-2-parent.com . 500 max pixels. Signatures should be no longer than 500 pixels, this includes the *entire* signature (tickers, blinkies, pictures, etc). Here is an example of what 500 pixels looks like (only to the 500 pixel line). http://www.parent-2-parent.com/tmp/600.gif Tickers: 1 per child, giving...
Hello and Welcome! http://parent-2-parent.com/newforum/../forum/images/smilies/sign_welcome.gif Please take a moment to look around and get to know our site. We have some wonderful members who are fun, interesting, supportive and informative! Please check out our "FAQ" page for some basic information. The link is listed at the top of the forums in the blue bar. ** If you have recently registered and can not post, chances are you did not "verify your email" which means when you...
Hello Everyone! We'd like to remind everyone of our Calendar feature. Anyone can use the calendar to post about special dates or upcoming appointments, etc. You can find the calendar by clicking on the following link, which will take you directly to the calendar ( http://parent-2-parent.com/forum/calendar.php? ). You can also find the calendar located in the blue toolbar at the top of the page. To add a date click on the "Add new event" button to the right of the screen at the top....
Normal Threads
Hello My name is Jamie, Our son was diagnosed with mito in the beginning of January. It was a long road to get the diagnoses. My son has a lot of GI problems and that is what I thought we were dealing with. Then last January he woke up one morning and was not able to walk with out falling. Take one step fall get up take three step fall. I took him in and we did an x-ray and they found a birth defect in the bone but told me that it was not the cause. Then one morning he woke up and he was...
I am Linda. Single mommy to Alex and Aiden. Alex is 5 and was diagnosed with classic autism when he was 3.5 years old. Since then he has started school where he recieves ST and OT. He also got private ST and OT. In Jan. he started recieving 25+ hours a week of home based ABA therapy. He has come a long way in the last year and a half and I couldn't be prouder. Aiden is 1 and has had numerous minor medical issues. He started OT at 4 months old to help with the torticollis. They stayed...
I've been lurking here for a while, and I figured I would finally introduce myself. My name is Wendy and I have six children. Our youngest, Nora, just turned three. She has a whole host of issues and diagnoses, including Down syndrome, severe GERD, dysphagia, dysmotility, FTT, chronic aspiration, and chronic lung disease. She has a fundo and is fed about 2/3 by gj-tube and 1/3 by TPN, which we just started last week.
Hello all! I found this group last night while googling Mitochondrial Myopathy. My name is Shelly and I am mom to 3 great kids; Alyssa 12, Mattie 9, and James 8. My daughter Mattie was diagnosed with Klippel Feil syndrome as an infant. She has also recently been diagnosed with "probable" mitochondrial myopathy. It looks like you all have a good number of mito moms, so I thought I would join and try learn a bit more. Mattie is hard of hearing and has a BAHA implant on her right side,...
Hi Everyone... just wanted to say hi and glad to have found this board. I am mom to Ayden, who is now a month away from 4. He is a former 26 weeker and had a trach, vent, and oxygen, but has since ditched all those. Occasionally when he is sick he will need a boost of O's to get him through the day. The only thing remaining is his g-tube and being able to sustain his weight orally. We are not even close to that yet as we are stuck on pureed foods. :( He started preschool this year...
I've posted a few times on the board but never introduced myself. I'm a SAHM, married for almost 9 years to my amazing husband who is a police officer. We have 3 beautiful children ages 6, 4 and 2. All three are adopted internationally. The youngest, "A", has down syndrome. She's been with us about 6 months. We've spent that time trying to unravel her eating issues. She came home very under weight but since she's from a poor country we thought at first that it was simply a lack...
Hi I am a mom of three beautiful kids, the last one has cerebral palsy, we live in Mexico city and unfortunately there is not much support in our country with this angels, our doctor suggested a wheelchair for Fernanda ( our little angel) but we are lost with the multiple choices, is there anyone that can help me where to look and buy. THanks so much :loveheart
I am new here and wanted to introduce myself and my special daughter. My name is Mellanie and I have 3 children - Ryan, 10, Rachel 7 and Bekah who will be 4 on 2/24. Rebekah was diagnosed with Kabuki Syndrome at 5 months old. It has been an interesting 4 years since she was born. I spent a lot of time in the first two years reading every thing I could about Kabuki Syndrome and expecting her to be "just like" all of the other kids with KS. Of course she is not just like anyone. Some things...
Hi-just thought I would make an introduction! Nolan was born in August 2007 and was found to have a moderate hearing loss at birth. At the time, it was thought to be a non-syndromic hearing loss, as other "issues" were not associated with the hearing loss. He got his hearing aids at the age of four months. He was found to have persistent otitis media and has had two sets of PE tubes placed, and a third is soon to follow. At the age of 11 months, he was failure-to-thrive and anemic. He...
Hello all. I am Amanda, mom to Justin age 9, Madison age 7, foster mom to Holden age 14 months with suspected mito disease (not sure what exactly-possibly Leigh's). I homeschool our oldest, my middle is in K at public school this year. I was a special ed teacher until I started staying home with the kids. We're a pretty "crunchy" family who lives in a house on 50 acres of woods in upstate NY. Holden has been placed with us since last July. He has a sibling who is 2 1/2 with a mito disease who...
i used to be here before when my daughter got very ill. but i haven't gave back on for a very long time, around the time they was changing the site to make it better. i can't get back to my old account, cause i don't really rember my password and i guess if your not on in a long time something happens to your account.????? so i had to reg- again. i also try to have it sent to my email address but when i reg the first time i had a different email account. i would like to get my old account back...
I wasn't sure what forum to post this in, so I'm trying here... I'm wondering if anyone here has adopted their child with special needs? We are currently fostering our little guy and are seriously considring adopting him. I'm wondering how your other kids adjusted, how you made the decision, etc. any insights would be great. Thanks!
1. I filled out my signature but it's not showing after my posts. What am i doing wrong? 2. When I post it says that my message has to be approved by a moderator. Is this standard for new members? How long will I be moderated? Thanks! :)
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