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January 19th, 2009
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March 14th, 2010 12:34 AM
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Favorite Part of Parent-2-Parent
Sharing ideas on making life easier when you have a child with special needs. I love having a shoulder to cry on when I need it....though that is not often. Getting great, honest advice.
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About Me
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About My Children
Children's Names and Birthdays
Anna 1-15-97
Cade 2-11-01
Gracie 4-21-03
Asa 10-7-07
Child's Background
Anna is our first born. She is growing up but is still sweet, kind, loving and funny! She is incredibly shy! I was the same way and I'm trying to get her out of her shell so she won't miss out on some of the fun things I did! She loves, loves, loves to read and write short stories!
Child's Background
Cade is all boy!! He plays baseball and rides 4 wheelers. He loves exploring the outdoors. He started riding a bicycle before he was 4 and was doing tricks from day 1!!! Unlike his older sister, he hates to read!!! He is great at math though.
Child's Background
Gracie is more like Cade than Anna. In fact, for a while she thought she was a boy of the same age! She tries everything he does! She plays t-ball and loves sports. She loves climbing trees more than anything! Somehow she gets in trees that are much too big for her and then gets stuck! Thankfully she takes a buddy with her to go get help! She has asked for a "climbing tree" for every holiday for 2 years!
Child's Background
Asa was our surprise child! He has been surprising us since day 1! He was hypotonic at birth and unable to suck. He became FTT at 2 months and had terrible reflux. His hypotonia was still quite severe and he was being seen by many specialist. At 9 months old, he had a Mickey button G-tube and a muscle biopsy done. When he was 13 months old we received a diagnosis of Mitochondrial disease, complex IV.

He still receives about half his nutrition via bolus tube feeds. He can eat babyfood and chew a little. His hypotonia is still quite bad. At 22 months he is unable to crawl, get into sitting or walk. He has made great progress though and is currently evaluated at a 7 month old level.

  1. joyboytinkertoy
    is all the duocal gone.
  2. Zmom
    If you still have the Duocal, I would love to have it. Just let me know how much $$ you need. I can do paypal or a check!
    Janet Landrum
    523 East Grinnell Drive
    Burbank, CA 91501

    Thank you!
  3. mommato3
    We could use the neocate jr as well as some duocal. I hate to take all the duocal as I don't know if my son can tolerate it yet. His nutritionist suggested we try it but he has been sick and it is quite expensive along with the formula so we've held off. Let me know. Thanks!
Showing Visitor Messages 1 to 3 of 3

About momabear-4

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About Me

Basic Member Information and more...

Type of Member
Parent
Profession/Other
Stay at Home Mom who is never at home!
Occupation
Home manager
Location
West Tennessee
Facebook Page
Kim Wilson from Mercer TN
P2P Membership Details

Information about your Parent-2-Parent Membership

Favorite Part of Parent-2-Parent
Sharing ideas on making life easier when you have a child with special needs. I love having a shoulder to cry on when I need it....though that is not often. Getting great, honest advice.
My Interests

You can list some of your interests, hobbies, favorites (i.e. music and movies etc.).

My interests include...
Mostly stuff that involves the kids! I do enjoy my internet time though!
Favorite Movies
Cars, Facing the Giants
Favorite Music
Natalie Grant, Chris Tomlin, my girls singing in the shower!
Favorite TV Shows
I know I watch too much but nothing is really jumping out at me right now.
About My Children

You can list details about your child/ren here.

Children's Names and Birthdays
Anna 1-15-97
Cade 2-11-01
Gracie 4-21-03
Asa 10-7-07
Child's Background
Anna is our first born. She is growing up but is still sweet, kind, loving and funny! She is incredibly shy! I was the same way and I'm trying to get her out of her shell so she won't miss out on some of the fun things I did! She loves, loves, loves to read and write short stories!
Child's Background
Cade is all boy!! He plays baseball and rides 4 wheelers. He loves exploring the outdoors. He started riding a bicycle before he was 4 and was doing tricks from day 1!!! Unlike his older sister, he hates to read!!! He is great at math though.
Child's Background
Gracie is more like Cade than Anna. In fact, for a while she thought she was a boy of the same age! She tries everything he does! She plays t-ball and loves sports. She loves climbing trees more than anything! Somehow she gets in trees that are much too big for her and then gets stuck! Thankfully she takes a buddy with her to go get help! She has asked for a "climbing tree" for every holiday for 2 years!
Child's Background
Asa was our surprise child! He has been surprising us since day 1! He was hypotonic at birth and unable to suck. He became FTT at 2 months and had terrible reflux. His hypotonia was still quite severe and he was being seen by many specialist. At 9 months old, he had a Mickey button G-tube and a muscle biopsy done. When he was 13 months old we received a diagnosis of Mitochondrial disease, complex IV.

He still receives about half his nutrition via bolus tube feeds. He can eat babyfood and chew a little. His hypotonia is still quite bad. At 22 months he is unable to crawl, get into sitting or walk. He has made great progress though and is currently evaluated at a 7 month old level.

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Kim

Mom to Anna (13), Cade (9), Gracie (6) and

Asa (2)-Mito complex IV
G-tube feed, hypotonia, global delays

www.celebratinginchstones.blogspot.com

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