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January 19th, 2009
Last Activity
March 13th, 2010 12:06 AM
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About myjacob1

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About Me

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Type of Member
Parent
Location
Michigan

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Chris- proud Mommy to Nick (11) my frog and soccer lovin boy! :playvideogames:
Jacob (7) Skin biopsy shows DX of Neuronal Ceroid-Lipofuscinoses (NCL or Batten Disease for short) a rare progressive disease with no cure, Epilepsy, Fundo x2, hiatal hernia repair x3, patch placed to strengthen diaphram, G-tube 7-04 to 8-06, GJ placed 8-06, back to G tube 10-06, dysphasia, T & A, reflux, Global Developmental delays, Microcephaly, fatigue, heat intollerance, sensory integration disorder, DGE (improved), wears DAFO's, early stages of retinitis pigmentosa, behavior issues, completed intense day feeding program (9-7-07) and was 100% oral now tube fed again. All around lovable little guy. :mickey_balloon:
Visit me at www.caringbridge.org/visit/jacobgeer and www.jacobsprayer.org

Jacob’s Montage
Sophia (Jan. 06) my miracle baby :tinkerbell2:
Joshua 8/16/08 our surprise! :babyboy:
8 Angels in heaven (miscarriages) :angel_teu35:
wife to Rob for 13 yrs

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Last Post
Nick has his Odyssey of the Mind competition! March 13th, 2010 12:06 AM
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July 31st, 2009
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  • Thanked 34 Times in 34 Posts
General Information
Last Activity
March 13th, 2010 12:06 AM
Join Date
January 19th, 2009
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