View Profile
View Forum Posts
Private Message
View Blog Entries
View Articles
Reply With QuoteHope the surgery and recovery goes well and ya'll are back home and doing better soon. Hugs, Fay (Scott's Mom)
Ben goes in for his GJ tomorrow. I know it is a straight forward thing but he doesn't get over these things very quickly and it's another GA.
Thanks to you all for your advice and support.
Helen
Wife of Paul
Mummy to Izzy 5 - eosinophilic gastroenteropathy,multiple food allergies and a slow transit gut. Allergic eczema and asthma.
Meds - mesalazine, ketotifen, cetirizine, nalcrom and inhalers.
Mummy to Ben 3 - eosinophilic gastroenteritis and lymphonodular hyperplasia. Gut nerve damage causing delayed gastric emptying. Pneumatosis intestinalis. Bacterial overgrowth. Serious FTT.
Meds - sulfasalazine, nalcrom, singulair, ketotifen, lansoprazole, amitriptyline, codeine, movicol, azithromycin, folic acid and weekly methotrexate injection.
TPN dependent. Nil by mouth. PEGJ insitu
Previous multiple food allergies.
Hope the surgery and recovery goes well and ya'll are back home and doing better soon. Hugs, Fay (Scott's Mom)
I'll be praying that everything goes well tomorrow!
Heather Wife to Paul
Mom to
Elyssa - 5 - perfectly healthy, although very strong willed
Katlyn - 2 - umbilical granulom removed 09-06, GERD which is getting worse, FTT, asthma, dyspagia (not allowed liquids by mouth, but safe with chewables and purees), slight low tone all over, weak joint, speech delayed - caught up - fell behind again - caught up again (this time they are keeping her in speech to make sure she doesn't fall behind again), g-tube placed 12-14-07, finally got MIC-Key 06-07,dificulty regulating temps, balance and strength seems to come and go, positive autonomic eye drop test result, motility seems to have slowed but can't find a reason for it, finally got MIC-Key 06-07, clinical Mito dx
meds. - Prevacid, Reglan, Singulair, Cromolyn, Xopenex as needed, Miralax, Nuproxin, B50, CoQ10
Praying all goes well.
Shannon
Wife to Gabe 11/2/96
Mom to:
:tinkerbell2: Hannah 3/22/03 - Chronic ear infections as baby with tubes placed. Otherwise, perfectly healthy.
Caleb 7/14/05 - Former 35 weeker: GERD, FTT, Chronic Constipation, Chronic gut pain, developmental delays, Dysphagia & Sensory Processing Disorder. NG tube for 8 months; G-tube (Bard) since 7/11/07.
Praying!
Sarah
Isaac-6/18/05G tube. Suspected Mito disorder. Receives OT, PT and Speech. Very sweet little guy! Going to see Genetics soon
Elijah-5/29/08Happy boy and a big piggy eater! Receives Pt. Going to see a Neurologist and Genetics soon
Good luck.
Chaney
Mom to
Zoe Marie
9/22/08
TODDLER extraordinaire
&
Jackson Presley
5/31/03
Vaccine-induced encephalopathy since 12/9/04
CP (quad), seizures, 100% G-tube fed (previously GJ), neuro-related vomiting & motility issues, CVI, dysautonomia
meds: keppra, glycolax, lyrica, oral baclofen, lamictal, robinul, zofran
"Be Kind, for everyone you meet is fighting a hard battle"--Plato
I hope it goes well!
Susan, mom toKaruna (6.5yo)
Karuna has Cerebral Palsy (from HIE), Dysautonomia, and Autoimmune Disease (Crohn's disease + ?). She has a Broviac Central Line, GJ tube, caths, uses a foley at night, is 100% TPN dependent, and on oxygen. Visit Karuna's Caringbridge Page
Sameer (5yo)Former refluxer with asthma and a total terror!
Neena (born 7/20)
Check out my E-magazine: www.ComplexChild.com
Praying
Chris- proud Mommy to Nick (11) my frog and soccer lovin boy! :playvideogames:
Jacob (7) Skin biopsy shows DX of Neuronal Ceroid-Lipofuscinoses (NCL or Batten Disease for short) a rare progressive disease with no cure, Epilepsy, Fundo x2, hiatal hernia repair x3, patch placed to strengthen diaphram, G-tube 7-04 to 8-06, GJ placed 8-06, back to G tube 10-06, dysphasia, T & A, reflux, Global Developmental delays, Microcephaly, fatigue, heat intollerance, sensory integration disorder, DGE (improved), wears DAFO's, early stages of retinitis pigmentosa, behavior issues, completed intense day feeding program (9-7-07) and was 100% oral now tube fed again. All around lovable little guy. :mickey_balloon:
Visit me at www.caringbridge.org/visit/jacobgeer and www.jacobsprayer.org
Jacob’s Montage
Sophia (Jan. 06) my miracle baby :tinkerbell2:
Joshua 8/16/08 our surprise! :babyboy:
8 Angels in heaven (miscarriages) :angel_teu35:
wife to Rob for 13 yrs
There are currently 1 users browsing this thread. (0 members and 1 guests)
Visit Homepage
