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Reply With QuoteSKIIBOSKI all the way baby!!!!
Now that there have been 2 shows on, what did you think of everyone so far? Who do you like? Who was crazy? Who was creepy? Who was hysterical?? Let's dish...
MelodyMitochondrial Cytopathy, complex 1 def (ND1 gene mutation), PCOS, GERD, RAD
DW of Doug and SAHM to
Daniel 3/06/08
Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), reflux, laryngomalacia, immune deficiency secondary to MitoTakes - Prevacid, Bethanechol, ZyrtecNathan 3/23/05 :eating:Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), GERD, DGE, Hypotonia, Myopia (nearsighted), Asthma, Immume Deficiency secondary to Mito.Has - Ear tubes x 2 (PE & T), Adenoidectomy, PT, bilateral AFO's, IVIG every 4 wks.Takes - Prevacid, Erythromycin, Miralax, Carnitor, Riboflavin, Folate, Singulair, Veramyst, Xopenex prn, Pulmicort, Acidophilus.Nicholas 11/11/02 :cowboy:Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), GERD, Dumping Syndrome, DGE/Gastroparesis, Reactive Airway Disease, Hypotonia, Myopia (nearsighted), Immune Deficiency secondary to Mito, recurrent MRSA.Has - Open Nissen Fundo, Pyloroplasty, GJ button, overnight J feeds, O2 at night, OT, PT, bilateral AFO's.Takes - Prevacid, Reglan, Miralax, Carnitor, Riboflavin, Folate, Singulair, Pulmicort, Xopenex prn, Acidophilus.Visit Nicholas, Nathan, and Daniel at: http://www.caringbridge.org/visit/pohlaboys/
Moderator and Community Host of Mitochondrial and Metabolic disorders, and Home Life Forums.
SKIIBOSKI all the way baby!!!!
Suzi: PCOS, OCD/anxiety, infertility; wife to Lamar, on the autism spectrum (unsure of dx) and infertility
Elisa, 11/14/2005: Chromosome rearrangement involving 3, 7 and 4 with a duplication of 3q and deletion on 4q, classical autism, severe global developmental delay, seizure disorder, reflux, aspiration/100% g-tube fed, dysphagia, right facial palsy, mild hypothyroid, asthma, severe bilateral hearing loss, central sleep apnea, myopia, astigmatism, Chiari type I malformation, multiple minor dysmorphic features/duplication 3q syndrome, autonomic symptoms, intermittent sensory ataxia, constipation, hypoglycemia with illness, ASD/VSD closed, cleft palate repaired. Labs show mild amino acid abnormalities. Meds: Prilosec, Benadryl, Miralax, Albuterol, Flovent, Bactroban, Lacrilube ointment, Synthroid. My Meesa!
Eliana, 1/26/2009: Bilateral congenital cataracts removed, aphakic glaucoma, strabismus left eye, ptosis left eyelid, horizontal end gaze nystagmus, moderate communication delay, mild gross and fine motor delay, feeding problems, constipation, reflux, MSPI. History of multiple issues in infancy including central apnea, lethargy, vertical nystagmus, elevated liver functions, all (mostly?) resolved now. Meds: Miralax, Cosopt, Xalatan, Prevacid Solutabs. My Lili!
He was something. Iam still loving the "Pants on the Ground" guy...he rocked. The guy on the first show who ticked off Kara looked like a serial killer to me...he was creepy! And guitar girl was something too...that get up was just so strange. I could hardly pay attention to her singing since the glasses made her look like a bug with antennas!
Melody
DW of Doug and SAHM to
Daniel 3/06/08Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), reflux, laryngomalacia, immune deficiency secondary to MitoTakes - Prevacid, Bethanechol, ZyrtecNathan 3/23/05 :eating:Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), GERD, DGE, Hypotonia, Myopia (nearsighted), Asthma, Immume Deficiency secondary to Mito.Has - Ear tubes x 2 (PE & T), Adenoidectomy, PT, bilateral AFO's, IVIG every 4 wks.Takes - Prevacid, Erythromycin, Miralax, Carnitor, Riboflavin, Folate, Singulair, Veramyst, Xopenex prn, Pulmicort, Acidophilus.Nicholas 11/11/02 :cowboy:Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), GERD, Dumping Syndrome, DGE/Gastroparesis, Reactive Airway Disease, Hypotonia, Myopia (nearsighted), Immune Deficiency secondary to Mito, recurrent MRSA.Has - Open Nissen Fundo, Pyloroplasty, GJ button, overnight J feeds, O2 at night, OT, PT, bilateral AFO's.Takes - Prevacid, Reglan, Miralax, Carnitor, Riboflavin, Folate, Singulair, Pulmicort, Xopenex prn, Acidophilus.Visit Nicholas, Nathan, and Daniel at: http://www.caringbridge.org/visit/pohlaboys/
Moderator and Community Host of Mitochondrial and Metabolic disorders, and Home Life Forums.
I have watched in bits and parts so can't really comment. I don't get into the show till after they are done with try-outs etc.
Jennifer...Community ManagerHost Coordinator & Community Host
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There were some pretty good ones so far. I liked some of the stories, the girl with the Down Syndrome brothers had me tearing up.
Amy, Mom toKaylaNoah :talkonphone:
Nicholas :whitecat:, Common Variable Immune Deficiency (CVID), Asthma, Reflux, IBS. Recieves IVIG
I don't really get into it until after the try outs either.
Rest in Peace all our P2P Angels
Danielle Proud mommy to
Nicholaus Patrick 7-26-95--abused at age 3 months resulting in CP, seizures, blindness, nonverbal, nonmobile, GERD (nissen fundo 10-3-02 and g-button) my little prince;
Alexander Martin 12-15-00 (died 12-17-00)--my angel;
Victoria Noel 3-25-02 and Elizabeth Ashley 7-6-04--my two little healthy angelic princesses;
Wife to Christopher 6-21-99
Now see...I like it better before the show really starts. Eveyrone is good at the end, but I really like watching them go throug the tryouts to see how they get through until the end.
Melody
DW of Doug and SAHM to
Daniel 3/06/08Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), reflux, laryngomalacia, immune deficiency secondary to MitoTakes - Prevacid, Bethanechol, ZyrtecNathan 3/23/05 :eating:Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), GERD, DGE, Hypotonia, Myopia (nearsighted), Asthma, Immume Deficiency secondary to Mito.Has - Ear tubes x 2 (PE & T), Adenoidectomy, PT, bilateral AFO's, IVIG every 4 wks.Takes - Prevacid, Erythromycin, Miralax, Carnitor, Riboflavin, Folate, Singulair, Veramyst, Xopenex prn, Pulmicort, Acidophilus.Nicholas 11/11/02 :cowboy:Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), GERD, Dumping Syndrome, DGE/Gastroparesis, Reactive Airway Disease, Hypotonia, Myopia (nearsighted), Immune Deficiency secondary to Mito, recurrent MRSA.Has - Open Nissen Fundo, Pyloroplasty, GJ button, overnight J feeds, O2 at night, OT, PT, bilateral AFO's.Takes - Prevacid, Reglan, Miralax, Carnitor, Riboflavin, Folate, Singulair, Pulmicort, Xopenex prn, Acidophilus.Visit Nicholas, Nathan, and Daniel at: http://www.caringbridge.org/visit/pohlaboys/
Moderator and Community Host of Mitochondrial and Metabolic disorders, and Home Life Forums.
I have seen some good ones so far. Can't remember names though.
The Pants on the Ground craze is starting to get on my nerves though. I just don't get the hype.
Melinda- Wife to Dale (Married 10-3-92)
Proud Mom to:
Sarah (7-24-96)
ADHD, PDD-NOS Takes Paxil, Concerta, Melatonin
Connor (6-4-01)
Type 1 Diabetes , Reflux (off meds since his Fundo 7-31-07), Asthma, Allergies, chronic sinus disease and chronic ear infections
Takes: Pumping insulin w/ a Minimed 522 insulin pump, Pulmicort flexihaler, Rhinocort nasal spray, Hydroxyzine, allergy shots
ok did you watch last night on tuesday the BOOB girl ? She was VERY entertaining and was so outgoing. Her boob thing was funny too.
Katie - Milk and soy allergy - Hirsch Sprung Disease - Chronic Sinusitis - Prolapsed mitrovalve.
Married to Shaun DH - for 6 yrs - Mother to 2 beautiful children !
Rylie - 7/23/2004 - Lactose intolerant - born with umbilical hernia cute little outie belly button
Bryce - 6/22/2006 - GERD- Former 35 weeker - MSPI and (allergic colitis) - chronic ear infections (tubes placed 5/12/07) , eye infections, eczema, projectile vomiter, and tortocolis. Chronic sinusitis, immune difficiency. ALLERGIC TO : milk/soy/casein/pork/melon/ and peanut. MEDS ALLERGY : Amoxicillen
Takes : Prevacid and Amino acid formulas
I liked the girl who has a brother with Down Syndrome and the guy who had cancer. Love, love, love the old guy with his pants down and the girl last night that did the boob thing drove me crazy. Is anyone missing Paula yet? And if this really is Simons last year, will you continue to watch it with out him?
Not missing Paula and will not watch if Simon it's there. I just love that guy...lol.
~Christine~
Husband: Al
Kids:Brandon 1.24.93 (ADD/ADHD)Chelsea 12.17.95 (Epilepsy)Connor 2.19.98 (Asthma)Logan 8.14.03Cody 2.6.06 (speech delay)Austin 9.21.08 (Down Syndrome, Hirschsprungs)pull through 12.8.084.21.09 Dx Laryngomalacia
Ok...that boob thing was just weird...loved how Kara about jumped out of her seat when she did it after the song! The military guy singing Tiny Tim was so odd and that guy Curly made me sad when he left before he even got his "yes" or "no" answers.
Oh, and Shania Twain with that "bottom" comment to that one guy was pretty funny! Can't wait for tonight!
Melody
DW of Doug and SAHM to
Daniel 3/06/08Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), reflux, laryngomalacia, immune deficiency secondary to MitoTakes - Prevacid, Bethanechol, ZyrtecNathan 3/23/05 :eating:Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), GERD, DGE, Hypotonia, Myopia (nearsighted), Asthma, Immume Deficiency secondary to Mito.Has - Ear tubes x 2 (PE & T), Adenoidectomy, PT, bilateral AFO's, IVIG every 4 wks.Takes - Prevacid, Erythromycin, Miralax, Carnitor, Riboflavin, Folate, Singulair, Veramyst, Xopenex prn, Pulmicort, Acidophilus.Nicholas 11/11/02 :cowboy:Dx with - Mitochondrial Cytopathy, complex 1 def (ND1 gene mutation), GERD, Dumping Syndrome, DGE/Gastroparesis, Reactive Airway Disease, Hypotonia, Myopia (nearsighted), Immune Deficiency secondary to Mito, recurrent MRSA.Has - Open Nissen Fundo, Pyloroplasty, GJ button, overnight J feeds, O2 at night, OT, PT, bilateral AFO's.Takes - Prevacid, Reglan, Miralax, Carnitor, Riboflavin, Folate, Singulair, Pulmicort, Xopenex prn, Acidophilus.Visit Nicholas, Nathan, and Daniel at: http://www.caringbridge.org/visit/pohlaboys/
Moderator and Community Host of Mitochondrial and Metabolic disorders, and Home Life Forums.
They keep playing Pants on the Ground on the radio - and from the back seat - my formally NON VERBAL 3.5 year old starts LAUGHING Hysterically ans singing Pants on the Ground. It was HILARIOUS!!!!
If you can only be 28 and younger - how come he could audition?
Dawn W.
Mom to :queen: Emily 9-25-01
and :football:CJ 7-15-03
GERD, DGE, Former FTT, allergies and asthma.
Monthly allergy shots.
Outgrowing his mulitple food allergies!
And :fairy:Kelly 5-26-06
More Allergies then her brother, EE (in remission), E028 splash orally.
CANCER SURVIOR ~ Bilateral Wilms Tumor- kidney cancer! So teeny tiny - we call her "It Bit" for Itty Bitty - but we finally hit 25 lbs!
I've just watched a few minutes here and there. I liked the guy that got put in jail when he was 15. I loved his voice and Trouble is one of my fav. songs. I think Simon makes the show, not sure how it will do without him.
I liked the lil country girl from tennesse.. she jsut seemed innocent.. ps kara is REALLY getting on my nerves this year..
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EMMA 2 emanuel syndrome