Football.
What are you watching on tv this evening?
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Football.
Michele, Mother to Dante (4 yr old) - FTT since 4 mo. old, inability to swallow; NG for a yr followed by G-tube ; Graduated from Intensive Feeding Program in Richmond, VA on 3/21/08
Cricopharyngeal myotomies (2) and botox
Meds: Rondec, Singulair, Prevacid, Miralax


We watched football and now iron chef
Chaney
Mom to
Zoe Marie
9/22/08
TODDLER extraordinaire
&
Jackson Presley
5/31/03
Vaccine-induced encephalopathy since 12/9/04
CP (quad), seizures, 100% G-tube fed (previously GJ), neuro-related vomiting & motility issues, CVI, dysautonomia
meds: keppra, glycolax, lyrica, oral baclofen, lamictal, robinul, zofran
www.jacksonpresleydiamond.com
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"Be Kind, for everyone you meet is fighting a hard battle"--Plato




something on Discovery Channel that is narrated by the guy who does Dirtiest Jobs. It's a show on Pacific Ocean, animals in the ocean, and underwater volcanoes right now. Dh is mostly listening to it while he's working on the bathroom, but I'm okay with this one on in the background if the kids walk in. I sat down to watch the volcanoe creation part from underwater volcanoes. WOW!
Shannon
Wife to Gabe 11/2/96
Mom to:
:tinkerbell2: Hannah 3/22/03 - Chronic ear infections as baby with tubes placed. Otherwise, perfectly healthy.
Caleb 7/14/05 - Former 35 weeker: GERD, FTT, Chronic Constipation, Chronic gut pain, developmental delays, Dysphagia & Sensory Processing Disorder. NG tube for 8 months; G-tube (Bard) since 7/11/07.



I am watching Dirty Jobs
Karen
proud momma to Kiana 15, twins Nicholas & Alexander 13 and to^^ Ethan^^ (my ex-27wker)forever 9 yrs old, intestinal malrotation, fundo & hiatal hernia repair, esophageal, antroduodenal, colonic & anorectal manometry, resulting in dx of neuropathic chronic intestinal pseudo-obstruction of small intestine, large colon obstruction at the anal sphincter and visceral hyperalgesia .....intestinal failure due to absent interstitial cells of Cajal, TPN dependent, TPN Cholestasis and subsequent liver failure, ileostomy ....February 28 2009 received multi visceral transplant (stomach, small bowel, liver and pancreas)...February 5 2010 his spirit became too much for the body that held it captive, he could not be fixed and was released of his pain ....my hero, my boy)
http://www2.caringbridge.org/canada/ethanjakob/

Dh was watching a movie w/Samuel and I was actually reading a book that I just got out of the library.
Vicci
mom to Samuel![]()
"If everything seems to be going well, you have obviously overlooked something."



Desperate Housewives/Brothers & Sisters
Michelewho has decided that it is about time for a signature...how many years have I been here without one???
Devon (9) brings me here:30 week preemie, history of severe GERD with aspiration, esophageal dysmotility, bronchopulmonary dysplasia, hypotonia, suspected genetic syndrome, mild MR with global developmental delays, class 3 malocclusion, multiple surgeries including 2 fundos, supplemental G-J tube feeds, daily nebs, nectar thickened liquids, and a pure delight!!!




LOL we had DVD's in Libby and I watched Fame (the new one) and then we all watched some Buffy after dinner.
Kim ~ Mom to Libby 2/17/1994, 16 years old. Sweet and giving heart, with talent in art and music. Avid texter.
Wes 1/9/1996, 14 years old. My hugabug, and math star.
Tim 2/19/199, 11 years old. Helpful servants heart and loves chess.
Read more about me and my children
http://www.gilesfam.net
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We watched Hitch after football - even though we own the movie and have seen it a million times.![]()
Dawn W.
Mom to :queen: Emily 9-25-01
and :football:CJ 7-15-03
GERD, DGE, Former FTT, allergies and asthma.
Monthly allergy shots.
Outgrowing his mulitple food allergies!
And :fairy:Kelly 5-26-06
More Allergies then her brother, EE (in remission), E028 splash orally.
CANCER SURVIOR ~ Bilateral Wilms Tumor- kidney cancer! So teeny tiny - we call her "It Bit" for Itty Bitty - but we finally hit 25 lbs!
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