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My husband and I saw it, and both of us admitted afterwards that we were not emotionally ready. We spent the rest of the evening very subdued. Overall, though, I felt like it was a decent movie, and yes, it does give us hope!
I saw EM this weekend with another mom of a mito kiddo. It was a tear jerker for sure!
I know it doesn't have good reviews but it was inspirational and makes me hope for a cure for us soon!
Kim
Mom to Anna(13), Cade
(9), Gracie
(6) and
Asa(2)-Mito complex IV
G-tube feed, hypotonia, global delays
www.celebratinginchstones.blogspot.com
My husband and I saw it, and both of us admitted afterwards that we were not emotionally ready. We spent the rest of the evening very subdued. Overall, though, I felt like it was a decent movie, and yes, it does give us hope!
GL (16) - ADHD; with us until he decides it's time to leave.:playvideogames:
Maya (5) - DGE, atrial septal defect (resolved), atrial aneurysm (resolved) and most of all, mommy's pretty ballerina.:dance:
Alison (3) - External hydrocephalus, global hypotonia, bilateral ptosis, hyperopic astigmatism, atrial septal defect (resolved), congenital hip dysplasia, laryngeal cleft (repaired 1/08), tethered spinal cord (repaired 10/07), chronic constipation, GERD, aspiration of all thin liquids, velopharyngeal insufficiency, gross motor delays, and complex I and IV mitochondrial dysfunction, but still my smart-as-a-whip little spitfire.:fairy:
I'm glad to hear that it gives hope. I'm not sure that I can handle seeing that movie, because I'm sure I would ball my eyes out.
Heather Wife to Paul
Mom to
Elyssa - 5 - perfectly healthy, although very strong willed
Katlyn - 2 - umbilical granulom removed 09-06, GERD which is getting worse, FTT, asthma, dyspagia (not allowed liquids by mouth, but safe with chewables and purees), slight low tone all over, weak joint, speech delayed - caught up - fell behind again - caught up again (this time they are keeping her in speech to make sure she doesn't fall behind again), g-tube placed 12-14-07, finally got MIC-Key 06-07,dificulty regulating temps, balance and strength seems to come and go, positive autonomic eye drop test result, motility seems to have slowed but can't find a reason for it, finally got MIC-Key 06-07, clinical Mito dx
meds. - Prevacid, Reglan, Singulair, Cromolyn, Xopenex as needed, Miralax, Nuproxin, B50, CoQ10
this is one that I've really considered seeing...
____________Christywife to ScottMOM to:Andrew (7/27/94)Caleb (12/12/96)Courtney (09/05/98)Grace (08/13/02)Emma (12/02/04)Luke (10/08/07) GERD, motility issues, central apnea, chronic lung disease, 1 l O2 24 hrs, O2 and apnea monitors, 100% GJ tube fed, fundo, developmental delays, gross motor delays, FTT, hypotonic, hyperactive reflexes, nystagmus, anxiety. No diagnosis, but a possible Mito disorder; waiting on MB results.Meds: Prevacid, Albuterol nebulizer, Robinul, Clonazepam, Bentyl
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