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May 3rd, 2006, 12:20 PM
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#21 |
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Community Host
of the Welcoming Corner, the Entertainment Corner and Infancy & Toddlerhood forums.
 Join Date: May 2004
Posts: 7,566
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Re: Pretty much devastated.
Merilla
You are in my thoughts and prayers, as well as Noah..
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Sherry
MAYHost/Co-host of Welcoming Corner / Entertainment /Infant & toddler Asthma & Allergy Awareness, MS Awareness, Speech & Hearing Awareness |
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May 3rd, 2006, 12:37 PM
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#22 |
P2P Supporter:
Join Date: Aug 2005
Location: Pennsylvania
Posts: 3,658
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Re: Pretty much devastated.
I'll be praying that everything will be ok.
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Dawn Mom to: Eoin, 7: Gastroparesis, GERD, Constipation, Autumn, 3: Energy girl with possible reflux, tubes in ears. Isabel, 1: Dysphagia, Acid Reflux, FTT, G tube, Left eye - iris/lens adhesions. Deidre, 20: Married and going to make me a Grandma, EDD-Dec. |
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May 3rd, 2006, 01:27 PM
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#23 |
 Join Date: Nov 2004
Posts: 457
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Re: Pretty much devastated.
Merilla,
hang in there and keep us posted. You and Noah are in my thought and prayers. Julie |
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May 3rd, 2006, 01:47 PM
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#24 |
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Join Date: Oct 2005
Location: Massachusetts
Posts: 532
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Re: Pretty much devastated.
I'm so sorry. I hope they figure out what's causing the problem!
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Jenn Mom to:  Cameronborn 2/5/94 at 28 weeks at 2 lb. 8 oz., had Grade 1 IVH resulting in PVL. Cam has CP, FTT and reflux. G-tube placed 7/05. Meds: Protonix & Zyrtec.  Delaney born 5/11/04 at 35 weeks at 6 lb. 10 oz., Happy, healthy & HYPER!!!
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May 3rd, 2006, 01:48 PM
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#25 |
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Community Host
of Adaptive Equipment
P2P Supporter:
Join Date: Feb 2005
Location: Chicago, IL
Posts: 7,151
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Re: Pretty much devastated.
I'm so sorry. Sending hugs and prayers.
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Chaney  Mom to 5/31/03 Vaccine-induced encephalopathy since 12/9/04 severe GERD, GJ-tube fed due to dysphagia and sensory aversion, CP (spastic quadriplegia), seizures meds: keppra, robinul, miralax, zantac, neurontin, zelnorm  www.jacksonpresleydiamond.com   |
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May 3rd, 2006, 04:48 PM
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#26 |
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Community Host
of Children's Medical Matters
P2P Supporter:
Join Date: Jul 2004
Location: In a world all my own!
Posts: 3,521
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Re: Pretty much devastated.
You ladies are the best.
 I am still not "comprehending" how all of this is happening to be honest. Like many of you, I am trying to figure out why my child is the "exception" to all the rules. I know there is nothing I can do to change any of this and I just have to pray, listen, absorb and advocate when necessary. But, I am soooo very thankful to have such a wonderful group of moms who "get" what I am going through. Your support and prayers truly does make this more bearable. On a side note, I went by the ped's office today to pick up Noah's asthma camp forms and the nurse said the ped wants an update after the CT as he, too, is baffled by this. She said his heart breaks for Noah and all he could say was "what more does that kid need to deal with?"
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NOAH (10/25/99)- 35 week preemie due to HELLP syndrome; asthma, reflux, congenital bronchial stenosis; double aortic arch (surgically repaired 12/1/04), IgG deficiency (outgrown!), hiatal hernia, possible seizure disorder undiagnosed; extrinsic esophageal compression, causing dysphagia and oral aversions: all around great kid and destined to be a 1st round draft pick!
PRINCESS ABIGAIL (10/17/01)- chronic sinusitis, chronic ear infections, enlarged adenoids & tonsils (revised & removed 12/16/05), ecsema, asthma, chronic abdominal pain and re-diagnosed refluxer: Noah's biggest fan and the best little sister around!
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May 3rd, 2006, 04:49 PM
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#27 |
P2P Supporter:
Join Date: Feb 2004
Location: Pennsylvania
Posts: 1,389
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Re: Pretty much devastated.
I'm sorry I missed this yesterday. I hope the CT goes well and they can figure things out. We'll be thinking of you!
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Megan Wife to Chris since 8/8/98 Mom to Maeve: 3/13/03   Complete AV Canal Heart Defect , Ptosis, Duane's Syndrome, Bilateral Postaxial Polydactyly (all surgically corrected)GERD and DGE Former NG then G-J tuber, now with MICKey G button Meds: Digoxin, Enalapril and Periactin. No more reflux meds! Jack: 5/20/00, Loving kindergarten  http://mysite.verizon.net/maevecatherine (new site, still under construction) or http://www.carepages.com Carepage Name: BraveMaeve |
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May 4th, 2006, 04:03 PM
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#28 |
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Join Date: Feb 2006
Location: Herts, UK
Posts: 65
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Re: Pretty much devastated.
Hope the CT goes well and that you get some answers, thinking of you.
Hugs Debby
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Debby
Mum to Michael!!
24+5 Nov 99, Dysphagia, Pharengyl stage swallow impairment,
Bulbar Palsy, Dysfluency, G-Peg fed, Hypotonia, Ligmentus Laxity.
CLD/BPD, Autism and Learning Difficulties.
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May 4th, 2006, 04:21 PM
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#29 |
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P2P Supporter:
Join Date: Oct 2004
Location: Greenville, SC
Posts: 1,029
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Re: Pretty much devastated.
Praying for answers for you, Merilla.
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Shannon born 04/24/04 with large omphalocele with immediate repair reflux; slow motility; gtube placed 10/19/04 currently on prevacid, reglan, periactin and peptamen jr. formula More on Aidan: http://webpages.charter.net/the_wilsons/ |
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