We have the date - Parent-2-Parent & Reflux in Children

Jenna M · May 2nd, 2006, 06:32 PM

Of our sleep study. I had requested that it...if possible....be done on May 24th, the night before her appointment with the surgeon.

Bryn's RT just phoned and said that b/c Dr. McLuskey would be in on the 25th to give the surgeon a verbal report of the sleep study, it was ok with them!!!

The reason I asked for it to be done the day b/f was b/c we have 3 other clinics (Genetics, ENT, Pulmo) this month so I wanted to save as many trips down as possible.

The RT is also going to see about doing a 24 hour reflux probe to see how much Bryn is refluxing at this time.

What a relief, now we can sit down and plan out childcare, hotels etc..

**~ Jennifer ~** · May 2nd, 2006, 07:12 PM

I'm glad they were able to work with the schedule and get you in on that day.

**sknmom** · May 2nd, 2006, 09:14 PM

I'm glad to hear everything is scheduled and has worked out so well.

ralea03 · May 2nd, 2006, 10:09 PM

Im glad to hear that everything is in order!!!

**srmina** · May 2nd, 2006, 10:14 PM

I'm glad they were able to get everything coordinated. Keep us posted.

**merrifay** · May 2nd, 2006, 10:54 PM

That worked out really well, I'm glad they were able to make things easier and cheaper for you. I hope all the tests go well!

May 2nd, 2006, 06:32 PM	#1
Jenna M P2P Supporter: Join Date: Jun 2005 Location: Ontario, Canada Posts: 4,469	We have the date Of our sleep study. I had requested that it...if possible....be done on May 24th, the night before her appointment with the surgeon. Bryn's RT just phoned and said that b/c Dr. McLuskey would be in on the 25th to give the surgeon a verbal report of the sleep study, it was ok with them!!! The reason I asked for it to be done the day b/f was b/c we have 3 other clinics (Genetics, ENT, Pulmo) this month so I wanted to save as many trips down as possible. The RT is also going to see about doing a 24 hour reflux probe to see how much Bryn is refluxing at this time. What a relief, now we can sit down and plan out childcare, hotels etc.. __________________ WWW.caringbridge.org/visit/amberlynnmooney Jenna 28, Stickler Syndrome type III & Michael 24. Blessed parents of AmberLynn (Bryn) (22mos)16/04/04 Nonsense Mutation of gene 6P21.3 resulting in Stickler Syndrome with Pierre Robin Sequence. Aidin 5 Nonsense Mutation of gene 6P21.3 resulting in Stickler Syndrome Madylan 6 & Adam, 10. Margaret Adarah Rose ~*Passed~*

May 2nd, 2006, 07:12 PM	#2
~ Jennifer ~ Host Coordinator & Community Manager Community Host of the Towne Centre Join Date: Nov 2003 Posts: 12,547	Re: We have the date I'm glad they were able to work with the schedule and get you in on that day. __________________ Jennifer... Mom to Tyler (10yo Refluxer & DGE) Prevacid, Zelnorm, Miralax, Singulair, Allegra, Nasonex, and weekly Allergy shots Community Manager Host Coordinator & Community Host Towne Centre If you need assistance,help with the forums,or have questions please contact the community care team. communitycare@parent-2-parent.com

May 2nd, 2006, 09:14 PM	#3
sknmom Community Host of Towne Centre, Fundoplicaiton Issues and Middle & High School Years forums. Join Date: Nov 2003 Location: Southeast PA Posts: 8,186	Re: We have the date I'm glad to hear everything is scheduled and has worked out so well. __________________ Patti mom to Spencer - age 17 - really loveable kid despite being a teenager! Refractory GERD, severe esophageal dysmotility and aspiration due to redundant neoesophagus, gastroparesis, chronic aspiration pneumonia, restrictive lung disease, pulmonary abcesses due to aspiration, GJ button recently changed to MICKey G button!! 1/93 Nissen fundo 1/94 uncut Collis gastroplasty-Nissen fundo with pyloroplasty 11/94 cut Collis gastroplasty-Nissen fundo w/G-tube 8/97 partial esophagogastrectomy and modified Belsey fundo 12/00 esophageal resection with jejunal interposition (esophageal replacement) 7/01 gastric augmentation using transverse colon (stomach enlargement) 2/04 Open lung biopsy

May 2nd, 2006, 10:09 PM	#4
ralea03 P2P Supporter: Join Date: Jul 2004 Location: MN Posts: 2,117	Re: We have the date Im glad to hear that everything is in order!!! __________________ Rachel Mommy to: Taylor (12-18-95) ADHD,allergies,asthma Meds: Zyrtec, Naxonex, Advair and Adderall Olivia (6-7-02):Gluten Intolerance, milk & soy intolerance,GERD, RAD, chonic sinus infections, fat malasorption, primary immune deficiency, FTT, Possible bacterial overgrowth and dumping syndrome. Adenoidectomy 2/04, Pyloroplasty 12/04, Sinus surgery 12/04 & 12/05, Fundo 3/05 Meds: Nexium, Creon, Zyrtec, Carafate, Flovent and Creon 5 Sydney (9-18-03): Former FTT, GERD,NG 4/04-7/04. Fundo 7/04, G-tube 7/04-12/05. Meds: Prevacid Visit Olivia at: www.caringbridge.org/visit/oliviachiappetta

May 2nd, 2006, 10:14 PM	#5
srmina Community Host of Tube Feeding Issues and Adaptive Equipment P2P Supporter: Join Date: Apr 2004 Location: Chicago Posts: 11,054	Re: We have the date I'm glad they were able to get everything coordinated. Keep us posted. __________________ Susan, mom of Sameer , 3/4/05, happy former spitter Karuna , 7/6/03, G-button Main Diagnoses: Hypoxic Ischemic Encephalopathy, Cerebral Palsy, Severe GERD and associated neurogastro issues, Seizure Disorder (type undiagnosed), Laryngomalacia, Vision Impairment Current Meds: Prevacid in Caracream, Levsin, Zantac, Lactulose, Keppra, Neurontin, Zanaflex, Botox Injections, Off Klonopin for now! Visit Karuna at http://www.karuna.agrawalkids.com




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May 2nd, 2006, 10:54 PM	#6
merrifay Community Host Community Host of Children's Respiratory Disorders P2P Supporter: Join Date: Oct 2004 Location: Corpus Christi,Texas Posts: 1,907	Re: We have the date That worked out really well, I'm glad they were able to make things easier and cheaper for you. I hope all the tests go well! __________________ Mary, wife of Corbin mommy to: Caedon, "Buddy," healthy, my little man, 10-17-00 Caeley, "Precious," my princess, 12-01-03 rt. CDH, tracheobronchomalacia, trach, vent, reflux, g-j tube...meds: reglan, prilosec, aldactone, Diuril, lasix, albuterol puffs, flovent twice daily, feeds: 30 cal Elicare: am 55ml/hr, pm 25ml/hr, visit Caeley at: www.caringbridge.org/tx/caeley "Now unto Him that is able to do exceeding abundantly above all that we ask or think, according to the power that worketh in us," Eph. 3:20

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