New Pics of Maeve's Eye - Parent-2-Parent & Reflux in Children

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New Pics of Maeve's Eye

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May 6th, 2006, 06:26 PM	#1
Megan P2P Supporter: Join Date: Feb 2004 Location: Pennsylvania Posts: 1,389	New Pics of Maeve's Eye Here are some pictures of Maeve's eye. These were taken today, so it is a week and two days after the surgery. Thanks for looking! __________________ Megan Wife to Chris since 8/8/98 Mom to Maeve: 3/13/03 Complete AV Canal Heart Defect , Ptosis, Duane's Syndrome, Bilateral Postaxial Polydactyly (all surgically corrected) GERD and DGE Former NG then G-J tuber, now with MICKey G button Meds: Digoxin, Enalapril and Periactin. No more reflux meds! Jack: 5/20/00, Loving kindergarten http://mysite.verizon.net/maevecatherine (new site, still under construction) or http://www.carepages.com Carepage Name: BraveMaeve

May 6th, 2006, 06:44 PM	#2
Jenna M P2P Supporter: Join Date: Jun 2005 Location: Ontario, Canada Posts: 4,469	Re: New Pics of Maeve's Eye She looks great!!! __________________ WWW.caringbridge.org/visit/amberlynnmooney Jenna 28, Stickler Syndrome type III & Michael 24. Blessed parents of AmberLynn (Bryn) (22mos)16/04/04 Nonsense Mutation of gene 6P21.3 resulting in Stickler Syndrome with Pierre Robin Sequence. Aidin 5 Nonsense Mutation of gene 6P21.3 resulting in Stickler Syndrome Madylan 6 & Adam, 10. Margaret Adarah Rose ~*Passed~*

May 6th, 2006, 06:47 PM	#3
nicholasmom Community Host of Immune Disorders & Deficiencies, Medical Matters, Preschool Years, and the Elementary Years forums. P2P Supporter: Join Date: Nov 2003 Location: Nebraska Posts: 9,227	Re: New Pics of Maeve's Eye Wow.. she looks amazing!! __________________ Amy, Mom to Kayla 1/17/96, Epilepsy takes Keppra and Relpax Noah 2/1/99, Mild Reflux takes Prevacid and Nasonex Nicholas 12/21/02 , Common Variable Immune Deficiency (CVID), Asthma, Reflux, takes D'Allergy Jr, Nasacort AQ, Bactroban Nasal spray and Miralax daily and other meds prn and gets IVIG every two weeks SubQ at home Visit Nick's website

May 6th, 2006, 09:59 PM	#4
AidansMom P2P Supporter: Join Date: Oct 2004 Location: Greenville, SC Posts: 1,029	Re: New Pics of Maeve's Eye Wow! Great results - are you pleased? I think she looks awesome! __________________ Shannon born 04/24/04 with large omphalocele with immediate repair reflux; slow motility; gtube placed 10/19/04 currently on prevacid, reglan, periactin and peptamen jr. formula More on Aidan: http://webpages.charter.net/the_wilsons/

May 6th, 2006, 10:26 PM	#5
jacenmom P2P Fundraising Coordinator & Asst. Community Manager Community Host of Undiagnosed Disorders Support and Our Special Kids. P2P Supporter: Join Date: Nov 2004 Location: Woodbridge, CT Posts: 5,696	Re: New Pics of Maeve's Eye I think she looks great! __________________ Cathy Jared (1.28.00) dx: asthma, GERD, complete rigid ring trachea, amblyopia, sensory issues. Jacen (9.17.02) FG Syndrome... but the happiest little 3 year old!!! Cherish (Born - Passed - 7.8.03) Encephlocele, VSD, chiari malformation, ventricular meglies... Visit Jacen's Web page: http://www2.caringbridge.org/ct/jacenpaul/ Assistant Community Manager, Fundraising Coordinator and Community Host of Our Special Kids & Undiagnosed Disorder Support If you need have any questions or concerns, please contact the Admin Team at comments@parent-2-parent.com Know of a great fundraising opportunity... contact me at fundraising@parent-2-parent.com

May 6th, 2006, 11:57 PM	#6
MomtoAiden P2P Supporter: Join Date: Apr 2005 Location: Oklahoma Posts: 4,265	Re: New Pics of Maeve's Eye WOW i think the surgery did wonders...she looks fantastic! __________________ Jamie Mother to: Aiden born 02/23/04: Primary Dx: Pierre Robin Syndrome PEG tube 04/04-10/04 & G-tube 10/04 to present Small Slideshow of Aiden Our Gallery

May 7th, 2006, 12:14 AM	#7
JacksonsMom Community Host of Adaptive Equipment P2P Supporter: Join Date: Feb 2005 Location: Chicago, IL Posts: 7,151	Re: New Pics of Maeve's Eye She looks wonderful! __________________ Chaney Mom to 5/31/03 Vaccine-induced encephalopathy since 12/9/04 severe GERD, GJ-tube fed due to dysphagia and sensory aversion, CP (spastic quadriplegia), seizures meds: keppra, robinul, miralax, zantac, neurontin, zelnorm www.jacksonpresleydiamond.com

May 7th, 2006, 12:22 AM	#8
AggieMom Community Host of Home Life and Immune Disorders and Deficiencies P2P Supporter: Join Date: Dec 2003 Location: Somewhere outside of Houston, Texas Posts: 5,940	Re: New Pics of Maeve's Eye It is looking good! __________________ Melody DW of Doug and SAHM to Nathan 3/23/05 Dx with - Reflux, Torticollis, mild Plagiocephaly, Hypotonia, Global Dev Delays, Myopia (nearsightedness). Has - PT, OT, DT. Takes - Prevacid, Axid, Albuterol prn, and Miralax. Nicholas 11/11/02 Dx with - Reflux, Dumping Syndrome, DGE/Gastroparesis, Reactive Airway Disease, Hypotonia, Transient Hypogammaglobulinemia of Infancy (Primary Immune Deficiency). Has - Open Nissen Fundo, Pyloroplasty, G button, Pump feeds, Hippotherapy. Takes - Axid, Reglan, Periactin, Miralax, Nasonex, Flovent, Albuterol prn, Lactobacillus Acidophilus supplements. Visit Nicholas and Nathan at: http://www3.caringbridge.org/tx/nicholasp/ Community Host of Immune Disorders & Deficiencies and Home Life Forums.

May 7th, 2006, 08:23 AM	#9
merrifay Community Host Community Host of Children's Respiratory Disorders P2P Supporter: Join Date: Oct 2004 Location: Corpus Christi,Texas Posts: 1,907	Re: New Pics of Maeve's Eye Her eye looks very good! And she looks very cute, too! __________________ Mary, wife of Corbin mommy to: Caedon, "Buddy," healthy, my little man, 10-17-00 Caeley, "Precious," my princess, 12-01-03 rt. CDH, tracheobronchomalacia, trach, vent, reflux, g-j tube...meds: reglan, prilosec, aldactone, Diuril, lasix, albuterol puffs, flovent twice daily, feeds: 30 cal Elicare: am 55ml/hr, pm 25ml/hr, visit Caeley at: www.caringbridge.org/tx/caeley "Now unto Him that is able to do exceeding abundantly above all that we ask or think, according to the power that worketh in us," Eph. 3:20

May 7th, 2006, 09:14 AM	#10
ChillyJJ Community Host of Crafty Creations and Behind Closed Doors Join Date: Nov 2003 Location: Ontario, Canada Posts: 7,396	Re: New Pics of Maeve's Eye I had to go back and look at her pre-op pics!!! She looks great! __________________ Jennifer B - SAHM to Michael (7/18/97) and Connor (3/22/01) "You may house their bodies but not their souls, For their souls dwell in the house of tomorrow, which you cannot visit, not even in your dreams." - 'The Prophet' by Kahlil Gibran Come see what's new in the Crafty Creations forum!! For more adult conversations come see what's *Behind Closed Doors* (email comments@parent-2-parent.com for password)

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New Pics of Maeve's Eye

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